Families Resources & Downloads

Included below are documents and links which we hope you find relevant. If there’s something missing that you’d like to see, please let us know.

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TEMPERS! Awareness Raising Leaflet

TEMPERS! Awareness Raising Leaflet

One of our biggest challenges is making Kawasaki Disease memorable! Our Founder, Rachael, created the TEMPERS mnemonic for us with the aim of doing just that!

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TEMPERS for Awareness Day!

IKDAD 2018 – Tempers A4 Our TOP leaflet for raising awareness! Let’s make Kawasaki Disease memorable – TOGETHER!

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Colour Me In!

Colour Me In!

Running an awareness event for parents and children? Here’s a colouring activity sheet inspired by one of our Societi supporters!

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NHS Improvement Service – Patient Safety Alert – Stage One Warning

NHS Improvement Service – Patient Safety Alert – Stage One Warning

Correspondence to: NHS Improvement Service. Requires action by all providers of NHS funded care to assess and act on risks re failure to recognise acute coronary syndromes in Kawasaki Disease patients.

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Autumn/Winter 2017 Newsletter

Autumn/Winter 2017 Newsletter

Lots more going on! It’s been another busy few months for Societi and our Autumn/Winter newsletter picks out just a few highlights.

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Kawasaki Disease Myths & Facts – Do you know Kawasaki Disease?

Kawasaki Disease Myths & Facts – Do you know Kawasaki Disease?

Developed following many ‘Kawasaki Conversations’ with doctors and families who have experienced a Kawasaki Disease diagnosis, it’s clear that there is out dated information in circulation about Kawasaki Disease which we’re keen to help move on.

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Social media memes

Social media memes

A great way to raise awareness is to share information on social media. These jpegs are for you to download and use on your social media platforms.

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UK National Strategy for Kawasaki Disease

UK National Strategy for Kawasaki Disease

A U.K. Strategy has been developed by Societi; recognising the four parallel areas which must be progressed as part of an integrated, proactive response to the immediate needs identified.

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Why Societi? A Rationale for Co-ordination & Investment

Why Societi? A Rationale for Co-ordination & Investment

In January 2016 we prepared a document which describes the need for a co-ordinated, higher profile voice for Kawasaki Disease across the UK, so we can improve the outcomes for children experiencing Kawasaki Disease.

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RCPCH Conference Impact Statement

RCPCH Conference Impact Statement

We tooka stand an exhibition stand at the Annual Conference of the Royal College of Paediatrics and Child Health (RCPCH) at the end of May 2017.

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UK Kawasaki Disease Infographic – Issues and needs

UK Kawasaki Disease Infographic – Issues and needs

We have prepared clear summary statement, helped by the inclusion of ‘infographics’ to set out clearly what the current position with regard to Kawasaki Disease is in the UK – and what needs to be done.

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Think Kawasaki Disease – Awareness poster

Think Kawasaki Disease – Awareness poster

Making Kawasaki Disease memorable is important. Making it VISIBLE is important too. That’s why we have made a printable poster.

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2017 Societi Newsletter – Spring/Summer

2017 Societi Newsletter – Spring/Summer

What an incredibly busy few months… to check out our progress, see the milestones we are hitting together with our ambitious plans for the next six months, please download our latest newsletter.

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2016 Societi Newsletter – Summer

2016 Societi Newsletter – Summer

For an update on our work over the period December 2015, when we began, to June 2016 – together with forward plans, please download a copy of our Summer 2016 newsletter here!

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