We’re working to share knowledge and best practice, evidence based information.
Why? Because Societi research and our conversations with clinicians across the UK have revealed sometimes inconsistent management approaches to both acute Kawasaki Disease and long term management / clinical care arrangements. This means children affected may not always get the best possible care. Help us change this.
Useful Resources and Research
Lifetime cardiovascular management of patients with previous Kawasaki Disease
Increasing numbers of patients who suffered Kawasaki Disease in childhood are transitioning to the care of adult services where there is significantly less awareness and experience of the condition than in paediatric services. The aim of this document is to provide guidance on the long-term management of patients who have vascular complications of Kawasaki Disease […]
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Understanding some of the possible longer term issues
A leaflet written for parents and carers of children who have been affected by Kawasaki Disease.
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Utility of Coronary Computed Tomography Angiography in the Diagnosis and Management of Acute-Phase Adult-Onset Kawasaki Disease
A Japanese paper describing the use of CCTA to support Kawasaki Disease diagnosis.
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NHS Improvement Service – Patient Safety Alert – Stage One Warning
This is a patient safety alert issued in May 2016 to all NHS Trusts in England. It asked for action from all providers of NHS funded care to assess and act on risks re failure to recognise acute coronary syndromes in Kawasaki Disease patients.
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The emergence of Kawasaki Disease in India and China
Diagnosis and management of Kawasaki Disease in developing countries
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Management of Kawasaki Disease in adults
This review addresses gaps in the current knowledge of the disease and its optimal treatment, differences in the AHA and JCS guidelines, targets for future research and obstacles to transition of care from adolescence into adulthood.
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Corticosteroid therapy in Kawasaki Disease
This study suggests that corticosteroids combined with IVIG as initial therapy for KD showed a more protective effect against CAA, compared with conventional IVIG therapy, and the efficacy was more pronounced in the high-risk patient group.
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Diagnosis, Treatment, and Long-Term Management of Kawasaki Disease: A Scientific Statement for Health Professionals From the American Heart
AHA 2017 recommendations provide updated and best evidence-based guidance to healthcare providers who diagnose and manage Kawasaki disease, but clinical decision making should be individualized to specific patient circumstances.
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Kawasaki Disease – Pearls and Pitfalls
An article on the diagnosis and treatment of Kawasaki Disease.
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Pregnancy Management of Women with Coronary Artery Aneurysm following Kawasaki Disease During Childhood
A useful case report and discussion paper on pregnancy management of women with coronary artery aneurysm(s) following an episode of acute Kawasaki Disease in childhood. Kawasaki Disease is increasingly common and as incidence rises, the issues discussed in this paper will become increasingly relevant for clinicians caring for the growing number of patients who will […]
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Dermatologic Manifestations of Kawasaki Disease
This paper explores the acute dermatologic manifestations of Kawasaki Disease
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Acute Cardiovascular Management of Patients with previous Kawasaki Disease – NHS London Guidance
This guidance identifies risk factors, introduces the requirement for a person-specific protocol, and notes the need to ensure life-long follow up for those patients with coronary artery injury by a cardiology team with specialist interest in Kawasaki Disease.
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Kawasaki Disease Management