Learning & Information Resources

World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – A discussion with Dr Tom Johnson and Prof Robert Tulloh

World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – A discussion with Dr Tom Johnson and Prof Robert Tulloh

Rachael McCormack, Founder of Societi Foundation talks to adult cardiologist, Dr Tom Johnson and UK leading Kawasaki Disease expert Professor Robert Tulloh to discuss the topic “Kawasaki Disease in Adulthood.”

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World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – James’ Story

World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – James’ Story

James talks about his experience of Kawasaki Disease, how the consequences of delayed diagnosis have affected his adult life and how he’s been able to overcome the challenges of heart damage.

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World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Massoud’s Story

World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Massoud’s Story

Massoud, explains the consequences of living with the effects of Kawasaki Disease which went undiagnosed for years. As a doctor himself, Massoud points out the opportunities and benefits of increased knowledge and awareness for the acute and long term care of those affected by Kawasaki Disease.

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World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Kris’ Story

World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Kris’ Story

Kris tells how Kawasaki Disease has impacted him throughout his adulthood. He talks about some of the health challenges he has faced and the struggles he has met with being a younger person with heart damage.

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World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Rosie’s Story

World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Rosie’s Story

Rosie was unknowingly affected by Kawasaki Disease in her late teens which went undiagnosed. She talks here about the health issues and the challenges she has been faced with throughout her adult life because of this.

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The Little Book of Kawasaki Disease

The Little Book of Kawasaki Disease

We’ve created this lovely little book of Kawasaki Disease… which we hope you’ll enjoy. It’s packed with lots of information, including things we think you’ll already know about Kawasaki Disease and perhaps things that you won’t (yet!) It’s aim is to help you quickly and easily, and we hope enjoyably, get the in-depth understanding of […]

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Digital Kawasaki Disease resource pack

Digital Kawasaki Disease resource pack

This resource pack is intended as a learning resource for clinicians to help identify Kawasaki Disease and understand the issues surrounding it. Included in this Kawasaki Disease resource pack are the following: KD-CAAP clinical trial – a brief introduction to the KD-CAAP clinical trial with access to further information and useful patient resources. Spotting Zebras […]

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Kawasaki Disease Podcast – An Interview with top UK healthcare leaders

Kawasaki Disease Podcast – An Interview with top UK healthcare leaders

As we work to raise awareness of Kawasaki Disease and keep it high on the radar of clinicians as we go into autumn and winter, Rachael McCormack, Founder of Societi Foundation talks to Professor Damian Roland, Professor Paul Brogan and Professor Simon Kenny to discuss Kawasaki Disease. An interview with doctors, for doctors – but […]

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Kawasaki Disease Podcast – Protecting Tiny Hearts into the Future – An Interview with Dr Tom Johnson

Kawasaki Disease Podcast – Protecting Tiny Hearts into the Future – An Interview with Dr Tom Johnson

To listen to the podcast, click here. Alternatively, you can download our podcast transcript.

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Kawasaki Disease Podcast – The Latest Research – An Interview with Professor Despina Eleftheriou

Kawasaki Disease Podcast – The Latest Research – An Interview with Professor Despina Eleftheriou

To listen to the podcast, click here. Alternatively, you can download our podcast transcript.

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A UK Strategy for Kawasaki Disease

A UK Strategy for Kawasaki Disease

In 2016 Societi Foundation led the development of the first ever UK Strategy for Kawasaki Disease. This important document successfully directed the focus of the first five years of work by our charity. In that time much has been achieved, working through partnerships and creating change across the landscape of Kawasaki Disease in the UK. […]

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Kawasaki Disease Podcast – Presenting the facts and dispelling myths An interview with Professor Robert Tulloh

Kawasaki Disease Podcast – Presenting the facts and dispelling myths An interview with Professor Robert Tulloh

To listen to the podcast, click here. Alternatively, you can download our podcast transcript.

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Kawasaki Disease Podcast – What everyone needs to know! An interview with Dr Damian Roland

Kawasaki Disease Podcast – What everyone needs to know! An interview with Dr Damian Roland

To listen to the podcast, click here. Alternatively, you can download our podcast transcript.

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Understanding some of the possible longer term issues

Understanding some of the possible longer term issues

A leaflet written for parents and carers of children who have been affected by Kawasaki Disease.

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