Other Help and Support
Kawasaki Disease is a serious disease and can have long lasting effects on families. In fact, the impact on many families is huge – the worry and anxiety that serious illness brings can also impact the mental health of everyone involved. Every year there will be some children who spend considerable time in hospital, which brings tremendous pressures for many families and their seriously unwell children. And sadly, a few children each year die from Kawasaki Disease. Parents, brothers and sisters, wider family and friends can all be affected and need extra help.
A number of organisations exist that can provide this help, expert support, counselling and advice for families who find themselves faced with these immense challenges. A list of useful links have been added below and we are in the process of establishing a direct connection to these organisations, as partners, to help provide the best possible support for families in our Societi community.
The links below will take you to external websites which we hope are helpful. If you have been affected by Kawasaki Disease and have sought support from an organisation not listed here but which you’ve found helpful, please let us know so we can add it to this resources page and share with other families. Thank you.
Mental health support:
MindEd – https://www.minded.org.uk/ Are you a parent or carer who is concerned about the mental health of your child or teenager? Do you just want some hints and tips on parenting? MindEd for Families has advice and information from trusted experts and will help you to understand what problems occur, what you can do to best support your family, and how to take care of yourself. MindEd for Families is written by a team of specialists and parents, working together.
MIND – https://www.mind.org.uk/about-us/ – We provide advice and support to empower anyone experiencing a mental health problem. We campaign to improve services, raise awareness and promote understanding.
Young Minds – https://youngminds.org.uk/about-us/ We’re the UK’s leading charity fighting for children and young people’s mental health. We’re leading the fight for a future where all young minds are supported and empowered, whatever the challenges. We’re here to make sure they get the best possible mental health support and have the resilience to overcome life’s difficulties.Family and Sibling support.
Help and support when a child is seriously ill:
The Rainbow Trust – https://www.rainbowtrust.org.uk/ We are the leading organisation providing practical and emotional support to families who have a child with a life threatening or terminal illness.
Bereavement and child loss support:
Child Bereavement UK – https://www.childbereavementuk.org/ Child Bereavement UK helps children, parents and families to rebuild their lives when a child grieves or when a child dies. We support children and young people up to the age of 25 who are facing bereavement, and anyone affected by the death of a child of any age. Child Bereavement UK Helpline 0800 02 888 40. https://www.childbereavementuk.org/about-our-helpline Information © Child Bereavement UK
Child Death Helpline – http://childdeathhelpline.org.uk/ At the Child Death Helpline we’re here to listen. We understand that the death of a child is one of the most devastating events that anyone may experience. Sometimes the feelings of grief can be so overwhelming that they make everyday living very difficult – we’re here to help. Our dedicated helpline offers support to anyone affected by the death of a child of any age, under any circumstances, however recent or long ago.
Please note: Societi Foundation is not responsible for the content of these external sites.