Families Resources & Downloads

Included below are documents and links which we hope you find relevant. If there’s something missing that you’d like to see, please let us know.

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TEMPERS! Awareness Raising Leaflet

TEMPERS! Awareness Raising Leaflet

We are working to make Kawasaki Disease memorable! Download our TEMPERS leaflet to help us do this – and raise awareness of Kawasaki Disease.

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National Strategy Review 2016 – 2020 – Impact Statement

National Strategy Review 2016 – 2020 – Impact Statement

In 2016, Societi Foundation published the first ever National Strategy to address Kawasaki Disease, the leading cause of acquired heart disease in children in the UK. This impact statement summarises the work of Societi Foundation in delivering the national strategy and highlights the achievements realised.

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Kawasaki Disease Shared Statement

Kawasaki Disease Shared Statement

Societi were involved in the creation of a combined statement from a number of organisations for Kawasaki Disease around the world. All our communities have been affected by the recent, worrying press reports. Our Kawasaki Disease networks are collaborating on a global scale and we share our solidarity in providing consistent information to you as […]

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RCPCH Advice for Parents during Coronavirus/Covid-19

RCPCH Advice for Parents during Coronavirus/Covid-19

Royal College of Paediatrics and Child Health – Advice for parents during coronavirus

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Societi Christmas Newsletter 2019

Societi Christmas Newsletter 2019

Our festive 2019 newsletter is here – find out about the fabulous work of our Societi Supporters, projects, fundraising and much more!

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Societi Foundation Summer Newsletter 2019

Societi Foundation Summer Newsletter 2019

It’s been a busy few months since our last newsletter – find out about the fabulous work of our Societi Supporters, projects, fundraising and much more!

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Ladies Circle Kawasaki Conversation

Ladies Circle Kawasaki Conversation

Your Ladies Circle Kawasaki Conversation. Let’s get going!

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Impact Statement – Awareness Day 2019

Impact Statement – Awareness Day 2019

Awareness Day 2019 was a phenomenal success! Read more about our impact, together with our partners and supporters here!

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Understanding some of the possible longer term issues

Understanding some of the possible longer term issues

A leaflet written for parents and carers of children who have been affected by Kawasaki Disease.

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General Awareness Raising Poster

General Awareness Raising Poster

Pin this poster in any busy place – from a GP surgery waiting room to your local Post Office – and help us let people know about Kawasaki Disease.

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December Newsletter 2018

December Newsletter 2018

It’s been a busy few months in the run up to December 2018 – find out about the fabulous work of our Societi Supporters, projects, fundraising and much more!

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Marvellous March

Marvellous March

From knitted Easter chicks to paediatric conferences… March has been bursting at the seams! Read our newsletter here.    

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RCPCH Newsletter March 2018

RCPCH Newsletter March 2018

Societi attended the Royal College of Paediatrics and Child Health Conference in Glasgow in March 2018.  Read about our successful and productive few days at the conference.

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Kawasaki Disease Community Newsletter Article

Kawasaki Disease Community Newsletter Article

This newsletter article is really useful if you have a local newspaper/school paper/community newsletter that you would like to run a story on Kawasaki Disease.  Rachael sent this to her local village newsletter and they were more than happy to print the story. The article can be downloaded and emailed directly to your local news […]

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Coffee Morning Poster

Coffee Morning Poster

You can grow a Kawasaki Conversation over coffee with ease! Download your poster here.

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Cake Sale Poster

Cake Sale Poster

Anyone for Cake? A great way to bring people together and grow a Kawasaki Conversation – around cake!

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Non Uniform Day Poster

Non Uniform Day Poster

Wear a uniform to work or school? How about a non-uniform day as a fundraiser for Societi and to raise Kawasaki Disease Awareness?

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Your Kawasaki Conversation – Information Pack

Your Kawasaki Conversation – Information Pack

Want to start a Kawasaki Conversation at work, with your family, with local shops – your GP surgery? Find our how you can – in our Kawasaki Conversation information pack! TOGETHER we can make a difference!

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Colour Me In!

Colour Me In!

Running an awareness event for parents and children? Here’s a colouring activity sheet inspired by one of our Societi supporters!

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NHS Improvement Service – Patient Safety Alert – Stage One Warning

NHS Improvement Service – Patient Safety Alert – Stage One Warning

This is a patient safety alert issued in May 2016 to all NHS Trusts in England. It asked for action from all providers of NHS funded care to assess and act on risks re failure to recognise acute coronary syndromes in Kawasaki Disease patients.

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Kawasaki Kid

Kawasaki Kid

Read about one parent’s experience of Kawasaki Disease and her Super Hero son!

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Kawasaki Disease Myths & Facts – Do you know Kawasaki Disease?

Kawasaki Disease Myths & Facts – Do you know Kawasaki Disease?

Developed following many ‘Kawasaki Conversations’ with doctors and families who have experienced a Kawasaki Disease diagnosis, it’s clear that there is out dated information in circulation about Kawasaki Disease which we’re keen to help move on.

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UK National Strategy for Kawasaki Disease

UK National Strategy for Kawasaki Disease

A U.K. Strategy has been developed by Societi; recognising the four parallel areas which must be progressed as part of an integrated, proactive response to the immediate needs identified.

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UK Kawasaki Disease Infographic – Issues and needs

UK Kawasaki Disease Infographic – Issues and needs

We have prepared clear summary statement, helped by the inclusion of ‘infographics’ to set out clearly what the current position with regard to Kawasaki Disease is in the UK – and what needs to be done.

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FOAM, Medical Education

This fantastic clinical learning resource (click here to access the resource link) has been shared with full consent of the patients family as obtained by the resource developers, ASKSNIFF who together with Dr Damian Roland (@Damian_Roland) have given Societi permission to provide a link here for clinicians visiting our site. Presenting Complaint:  A 3 year old boy presents […]

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