Families Resources & Downloads

Included below are documents and links which we hope you find relevant. If there’s something missing that you’d like to see, please let us know.

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TEMPERS! Awareness Raising Leaflet

TEMPERS! Awareness Raising Leaflet

We are working to make Kawasaki Disease memorable! Download our TEMPERS leaflet to help us do this – and raise awareness of Kawasaki Disease.

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Priorities for Partnership

Priorities for Partnership

In this document, you will find information on Societi’s priorities and key activities for which we will need to find new funding sources, if we are to succeed. These priorities are a direct response to need – informed by evidence through research and which we believe will positively affect outcomes by reducing life long heart […]

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A UK Strategy for Kawasaki Disease

A UK Strategy for Kawasaki Disease

In 2016 Societi Foundation led the development of the first ever UK Strategy for Kawasaki Disease. This important document successfully directed the focus of the first five years of work by our charity. In that time much has been achieved, working through partnerships and creating change across the landscape of Kawasaki Disease in the UK. […]

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Kawasaki Disease – Presenting the facts and dispelling myths An interview with Professor Robert Tulloh

Kawasaki Disease – Presenting the facts and dispelling myths An interview with Professor Robert Tulloh

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Kawasaki Disease – What everyone needs to know! An interview with Dr Damian Roland

Kawasaki Disease – What everyone needs to know! An interview with Dr Damian Roland

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Societi Active World Heart Day Virtual 10K

Societi Active World Heart Day Virtual 10K

Be a part of our Societi Active World Heart Day Virtual 10K and help us raise awareness of Kawasaki Disease!  

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Societi Summer of Fundraising

Societi Summer of Fundraising

The last year has not been easy BUT the future is looking a little brighter. With restrictions being eased we can start to repair and focus on the future and that means FUNDRAISING!! We need your help, will you help us make this summer our most successful summer of fundraising? Read our summer of fundraising […]

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International Kawasaki Disease Awareness Day 2021 Impact Statement

International Kawasaki Disease Awareness Day 2021 Impact Statement

International Kawasaki Disease Awareness Day 2021 was phenomenal – our most successful campaign yet! #TeamSocieti filled the entire month of January with Kawasaki Disease awareness raising and projects designed to get everyone to KNOW Kawasaki Disease. This Impact Statement highlights just some of #TeamSocieti’s amazing successes, remarkable achievements and the hard work which led to […]

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Christmas Newsletter 2020

Christmas Newsletter 2020

Our Christmas 2020 Newsletter is here! And what a year it has been…! We hope you enjoy reading our jam-packed Christmas Newsletter full to the rafters of the incredible work of so many phenomenal Societi supporters – there’s never enough space mind you! Grab yourself a hot drink and mince pie, sit back, relax, and […]

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School’s Kawasaki Disease Information pack – pdf format

School’s Kawasaki Disease Information pack – pdf format

If you’d like a school in you local community to raise awareness of Kawasaki Disease, our schools pack is a really handy resource that can help you with that. The pack contains a letter you can cusomise and lots of posters and leaflets full of useful information to help raise awareness of Kawasaki Disease. It […]

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School’s Kawasaki Disease Information Pack – Word format

School’s Kawasaki Disease Information Pack – Word format

If you’d like a school in you local community to raise awareness of Kawasaki Disease, our schools pack is a really handy resource that can help you with that. The pack contains a letter you can customise and lots of posters and leaflets full of useful information to help raise awareness of Kawasaki Disease. It […]

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Virtual Fundraising from Home

Virtual Fundraising from Home

The current situation is affecting all our lives in lots of different ways and now more than ever your support is so important to us. If you’d like to start fundraising for Societi Foundation, or maybe your existing fundraising plans have been postponed or cancelled, we’ve put together a few ideas for virtual fundraising – […]

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World Heart Day 2020 – Impact Statement

World Heart Day 2020 – Impact Statement

Read our impact statement here to discover how the efforts of so many people made World Heart Day 2020 such a success and an extraordinary day for Kawasaki Disease awareness.

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Summer Newsletter 2020

Summer Newsletter 2020

Here is your Summer 2020 Newsletter! This is one like no other, a simply GARGANTUAN read of INSPIRATION and IMPACT! Sit back, relax and read all about what we (and you!) have been up to in recent months. With so many AMAZING stories from so many Societi Supporters, news about progress, projects and plans for […]

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Societi 10km Training Plans

Societi 10km Training Plans

If you’re thinking about joining #TeamSocieti and Societi Active in completing a Virtual 10k for World Heart Day – THANK YOU!! We know a 10k is no easy feat and we hugely appreciate all the effort you will be putting in to get your 10k done! To help you along the way, our amazing Societi […]

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Make-your-own Societi Face Mask

Make-your-own Societi Face Mask

Download and print a make-your-own Societi face mask template …

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National Strategy Review 2016 – 2020 – Impact Statement

National Strategy Review 2016 – 2020 – Impact Statement

In 2016, Societi Foundation published the first ever National Strategy to address Kawasaki Disease, the leading cause of acquired heart disease in children in the UK. This impact statement summarises the work of Societi Foundation in delivering the national strategy and highlights the achievements realised.

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Kawasaki Disease Shared Statement

Kawasaki Disease Shared Statement

Societi were involved in the creation of a combined statement from a number of organisations for Kawasaki Disease around the world. All our communities have been affected by the recent, worrying press reports. Our Kawasaki Disease networks are collaborating on a global scale and we share our solidarity in providing consistent information to you as […]

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RCPCH Advice for Parents during Coronavirus/Covid-19

RCPCH Advice for Parents during Coronavirus/Covid-19

Royal College of Paediatrics and Child Health – Advice for parents during coronavirus

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Societi Christmas Newsletter 2019

Societi Christmas Newsletter 2019

Our festive 2019 newsletter is here – find out about the fabulous work of our Societi Supporters, projects, fundraising and much more!

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Societi Foundation Summer Newsletter 2019

Societi Foundation Summer Newsletter 2019

It’s been a busy few months since our last newsletter – find out about the fabulous work of our Societi Supporters, projects, fundraising and much more!

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Ladies Circle Kawasaki Conversation

Ladies Circle Kawasaki Conversation

Your Ladies Circle Kawasaki Conversation. Let’s get going!

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Impact Statement – Awareness Day 2019

Impact Statement – Awareness Day 2019

Awareness Day 2019 was a phenomenal success! Read more about our impact, together with our partners and supporters here!

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Understanding some of the possible longer term issues

Understanding some of the possible longer term issues

A leaflet written for parents and carers of children who have been affected by Kawasaki Disease.

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General Awareness Raising Poster

General Awareness Raising Poster

Pin this poster in any busy place – from a GP surgery waiting room to your local Post Office – and help us let people know about Kawasaki Disease.

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December Newsletter 2018

December Newsletter 2018

It’s been a busy few months in the run up to December 2018 – find out about the fabulous work of our Societi Supporters, projects, fundraising and much more!

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Marvellous March

Marvellous March

From knitted Easter chicks to paediatric conferences… March has been bursting at the seams! Read our newsletter here.    

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RCPCH Newsletter March 2018

RCPCH Newsletter March 2018

Societi attended the Royal College of Paediatrics and Child Health Conference in Glasgow in March 2018.  Read about our successful and productive few days at the conference.

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Kawasaki Disease Community Newsletter Article

Kawasaki Disease Community Newsletter Article

This newsletter article is really useful if you have a local newspaper/school paper/community newsletter that you would like to run a story on Kawasaki Disease.  Rachael sent this to her local village newsletter and they were more than happy to print the story. The article can be downloaded and emailed directly to your local news […]

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Coffee Morning Poster

Coffee Morning Poster

You can grow a Kawasaki Conversation over coffee with ease! Download your poster here.

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Cake Sale Poster

Cake Sale Poster

Anyone for Cake? A great way to bring people together and grow a Kawasaki Conversation – around cake!

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Non Uniform Day Poster

Non Uniform Day Poster

Wear a uniform to work or school? How about a non-uniform day as a fundraiser for Societi and to raise Kawasaki Disease Awareness?

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Your Kawasaki Conversation – Information Pack

Your Kawasaki Conversation – Information Pack

Want to start a Kawasaki Conversation at work, with your family, with local shops – your GP surgery? Find our how you can – in our Kawasaki Conversation information pack! TOGETHER we can make a difference!

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Colour Me In!

Colour Me In!

Running an awareness event for parents and children? Here’s a colouring activity sheet inspired by one of our Societi supporters!

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NHS Improvement Service – Patient Safety Alert – Stage One Warning

NHS Improvement Service – Patient Safety Alert – Stage One Warning

This is a patient safety alert issued in May 2016 to all NHS Trusts in England. It asked for action from all providers of NHS funded care to assess and act on risks re failure to recognise acute coronary syndromes in Kawasaki Disease patients.

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Kawasaki Kid

Kawasaki Kid

Read about one parent’s experience of Kawasaki Disease and her Super Hero son!

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Kawasaki Disease Myths & Facts – Do you know Kawasaki Disease?

Kawasaki Disease Myths & Facts – Do you know Kawasaki Disease?

Developed following many ‘Kawasaki Conversations’ with doctors and families who have experienced a Kawasaki Disease diagnosis, it’s clear that there is out dated information in circulation about Kawasaki Disease which we’re keen to help move on.

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UK Kawasaki Disease Infographic – Issues and needs

UK Kawasaki Disease Infographic – Issues and needs

We have prepared clear summary statement, helped by the inclusion of ‘infographics’ to set out clearly what the current position with regard to Kawasaki Disease is in the UK – and what needs to be done.

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FOAM, Medical Education

This fantastic clinical learning resource (click here to access the resource link) has been shared with full consent of the patients family as obtained by the resource developers, ASKSNIFF who together with Dr Damian Roland (@Damian_Roland) have given Societi permission to provide a link here for clinicians visiting our site. Presenting Complaint:  A 3 year old boy presents […]

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