In this document, you will find information on Societi’s priorities and key activities for which we will need to find new funding sources, if we are to succeed. These priorities are a direct response to need – informed by evidence through research and which we believe will positively affect outcomes by reducing life long heart […]
In 2016 Societi Foundation led the development of the first ever UK Strategy for Kawasaki Disease. This important document successfully directed the focus of the first five years of work by our charity. In that time much has been achieved, working through partnerships and creating change across the landscape of Kawasaki Disease in the UK. […]
The last year has not been easy BUT the future is looking a little brighter. With restrictions being eased we can start to repair and focus on the future and that means FUNDRAISING!! We need your help, will you help us make this summer our most successful summer of fundraising? Read our summer of fundraising […]
International Kawasaki Disease Awareness Day 2021 Impact Statement
International Kawasaki Disease Awareness Day 2021 was phenomenal – our most successful campaign yet! #TeamSocieti filled the entire month of January with Kawasaki Disease awareness raising and projects designed to get everyone to KNOW Kawasaki Disease. This Impact Statement highlights just some of #TeamSocieti’s amazing successes, remarkable achievements and the hard work which led to […]
Our Christmas 2020 Newsletter is here! And what a year it has been…! We hope you enjoy reading our jam-packed Christmas Newsletter full to the rafters of the incredible work of so many phenomenal Societi supporters – there’s never enough space mind you! Grab yourself a hot drink and mince pie, sit back, relax, and […]
School’s Kawasaki Disease Information pack – pdf format
If you’d like a school in you local community to raise awareness of Kawasaki Disease, our schools pack is a really handy resource that can help you with that. The pack contains a letter you can cusomise and lots of posters and leaflets full of useful information to help raise awareness of Kawasaki Disease. It […]
School’s Kawasaki Disease Information Pack – Word format
If you’d like a school in you local community to raise awareness of Kawasaki Disease, our schools pack is a really handy resource that can help you with that. The pack contains a letter you can customise and lots of posters and leaflets full of useful information to help raise awareness of Kawasaki Disease. It […]
The current situation is affecting all our lives in lots of different ways and now more than ever your support is so important to us. If you’d like to start fundraising for Societi Foundation, or maybe your existing fundraising plans have been postponed or cancelled, we’ve put together a few ideas for virtual fundraising – […]
Here is your Summer 2020 Newsletter! This is one like no other, a simply GARGANTUAN read of INSPIRATION and IMPACT! Sit back, relax and read all about what we (and you!) have been up to in recent months. With so many AMAZING stories from so many Societi Supporters, news about progress, projects and plans for […]
If you’re thinking about joining #TeamSocieti and Societi Active in completing a Virtual 10k for World Heart Day – THANK YOU!! We know a 10k is no easy feat and we hugely appreciate all the effort you will be putting in to get your 10k done! To help you along the way, our amazing Societi […]
National Strategy Review 2016 – 2020 – Impact Statement
In 2016, Societi Foundation published the ﬁrst ever National Strategy to address Kawasaki Disease, the leading cause of acquired heart disease in children in the UK. This impact statement summarises the work of Societi Foundation in delivering the national strategy and highlights the achievements realised.
Societi were involved in the creation of a combined statement from a number of organisations for Kawasaki Disease around the world. All our communities have been affected by the recent, worrying press reports. Our Kawasaki Disease networks are collaborating on a global scale and we share our solidarity in providing consistent information to you as […]
This newsletter article is really useful if you have a local newspaper/school paper/community newsletter that you would like to run a story on Kawasaki Disease. Rachael sent this to her local village newsletter and they were more than happy to print the story. The article can be downloaded and emailed directly to your local news […]
Want to start a Kawasaki Conversation at work, with your family, with local shops – your GP surgery? Find our how you can – in our Kawasaki Conversation information pack! TOGETHER we can make a difference!
NHS Improvement Service – Patient Safety Alert – Stage One Warning
This is a patient safety alert issued in May 2016 to all NHS Trusts in England. It asked for action from all providers of NHS funded care to assess and act on risks re failure to recognise acute coronary syndromes in Kawasaki Disease patients.
Kawasaki Disease Myths & Facts – Do you know Kawasaki Disease?
Developed following many ‘Kawasaki Conversations’ with doctors and families who have experienced a Kawasaki Disease diagnosis, it’s clear that there is out dated information in circulation about Kawasaki Disease which we’re keen to help move on.
UK Kawasaki Disease Infographic – Issues and needs
We have prepared clear summary statement, helped by the inclusion of ‘infographics’ to set out clearly what the current position with regard to Kawasaki Disease is in the UK – and what needs to be done.
This fantastic clinical learning resource (click here to access the resource link) has been shared with full consent of the patients family as obtained by the resource developers, ASKSNIFF who together with Dr Damian Roland (@Damian_Roland) have given Societi permission to provide a link here for clinicians visiting our site. Presenting Complaint: A 3 year old boy presents […]