Families Resources & Downloads

Included below are documents and links which we hope you find relevant. If there’s something missing that you’d like to see, please let us know.

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TEMPERS! Awareness raising leaflet

TEMPERS! Awareness raising leaflet

We are working to make Kawasaki Disease memorable! Download our TEMPERS leaflet to help us do this – and raise awareness of Kawasaki Disease.

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Patient and Public Involvement KD-CAAP Clinical Trial

Patient and Public Involvement KD-CAAP Clinical Trial

This report focuses on our input into and support of the KD-CAAP clinical trial, our work in Patient and Public Involvement for the trial and Societi’s role within the Trial Managment Group.

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International Kawasaki Disease Awareness Day 2025 – Impact Statement

International Kawasaki Disease Awareness Day 2025 – Impact Statement

#TeamSocieti went above and beyond this International Kawasaki Disease Awareness Day to help us get Kawasaki Disease known right across the country. Read our statement about the impact we made together on the biggest International Kawasaki Disease Awareness Day ever!  

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World Heart Day 2024 – Impact Statement

World Heart Day 2024 – Impact Statement

Our World Heart Day campaign for 2024 highlighted the need for those who have suffered lasting heart damage from Kawasaki Disease to receive the correct and necessary follow up care they require.  We are proud to share with you just some of the impact we made, working together on our World Heart Day Campaign.

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A Manifesto for Kawasaki Disease

A Manifesto for Kawasaki Disease

We have set out a number of key needs in this Manifesto, on behalf of our growing community – an estimated 20,000 people in the UK who have been affected by Kawasaki Disease. We ask the incoming government, and MPs elected on 4 July 2024, to do all they can to respond to these needs, […]

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Societi Spring/Summer Newsletter 2024

Societi Spring/Summer Newsletter 2024

Why not take advantage of the warmer weather and the longer evenings to get out in the garden and take some time to relax whilst reading the latest Societi news!!

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International Kawasaki Disease Awareness Day 2024 – A three-month long campaign – Impact Statement

International Kawasaki Disease Awareness Day 2024 – A three-month long campaign – Impact Statement

This year, for International Kawasaki Disease Awareness Day, we took a HUGE leap forward and extended our campaign to cover a whole three months from the beginning of January to the end of March. Read our Impact Statement to find out how, TOGETHER, we have made a diffence to children affected by Kawasaki Disease!

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Text for an email to your MP – March 2024 Parliamentary Event

Text for an email to your MP – March 2024 Parliamentary Event

We are thrilled to announce that, as part of our national awareness campaign, we will be partnering with NHS Blood & Transplant to hold an event in the Houses of Parliament in March, to increase awareness of the need for plasma donations. Kawasaki Disease treatment, IVIG, is a treatment made from blood plasma, so donations […]

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General awareness raising poster

General awareness raising poster

Pin this poster in any busy place – from a GP surgery waiting room to your local Post Office – and help us let people know about Kawasaki Disease.

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World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – A discussion with Dr Tom Johnson and Prof Robert Tulloh

World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – A discussion with Dr Tom Johnson and Prof Robert Tulloh

Rachael McCormack, Founder of Societi Foundation talks to adult cardiologist, Dr Tom Johnson and UK leading Kawasaki Disease expert Professor Robert Tulloh to discuss the topic “Kawasaki Disease in Adulthood.”

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World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – James’ Story

World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – James’ Story

James talks about his experience of Kawasaki Disease, how the consequences of delayed diagnosis have affected his adult life and how he’s been able to overcome the challenges of heart damage.

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World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Massoud’s Story

World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Massoud’s Story

Massoud, explains the consequences of living with the effects of Kawasaki Disease which went undiagnosed for years. As a doctor himself, Massoud points out the opportunities and benefits of increased knowledge and awareness for the acute and long-term care of those affected by Kawasaki Disease.

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World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Kris’ Story

World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Kris’ Story

Kris tells how Kawasaki Disease has impacted him throughout his adulthood. He talks about some of the health challenges he has faced and the struggles he has met with being a younger person with heart damage.

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World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Rosie’s Story

World Heart Day Podcast Transcript – Kawasaki Disease in Adulthood – Rosie’s Story

Rosie was unknowingly affected by Kawasaki Disease in her late teens which went undiagnosed. She talks here about the health issues and the challenges she has been faced with throughout her adult life because of this.

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World Heart Day Family Story Podcast Transcripts – Sian’s story

World Heart Day Family Story Podcast Transcripts – Sian’s story

Read Sian’s Kawasaki Disease Family story.

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World Heart Day Family Story Podcast Transcripts – Olivia’s story

World Heart Day Family Story Podcast Transcripts – Olivia’s story

Read Olivia’s Kawasaki Disease Family story.

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World Heart Day Family Story Podcast Transcripts – Manda’s story

World Heart Day Family Story Podcast Transcripts – Manda’s story

Read Manda’s Kawasaki Disease Family story.

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World Heart Day Family Story Podcast Transcripts – Laura’s story

World Heart Day Family Story Podcast Transcripts – Laura’s story

Read Laura’s Kawasaki Disease Family story.

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World Heart Day Family Story Podcast Transcript – Alister’s story

World Heart Day Family Story Podcast Transcript – Alister’s story

Read Alister’s Kawasaki Disease Family story.

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Societi Summer 2023 Newsletter!

Societi Summer 2023 Newsletter!

As always, there’s so much to report on this summer, and never enough room to fit it all in! We’ve been incredibly busy here at Societi HQ – and many of you have been just as busy, with so much fundraising and awareness raising happening. Dive into our summer newsletter and find out who’s been […]

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Societi Christmas newsletter 2022

Societi Christmas newsletter 2022

Merry Christmas & Happy New Year ! Where has 2022 gone? Time has flown since our summer newsletter… and no wonder! We’ve been so busy and together, with your support, we’ve achieved so much! Read all about it in our Christmas 2022 Newsletter! Get your mince pies at the ready, fix yourself a hot drink […]

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World Heart Day 2022 – Impact Statement

World Heart Day 2022 – Impact Statement

We protected tiny hearts from Kawasaki Disease! We’re proud to share with you a snapshot of the just some of the impact we’ve made, working together on our World Heart Day campaign. Just take a look…

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Kawasaki Disease Podcast – An Interview with top UK healthcare leaders

Kawasaki Disease Podcast – An Interview with top UK healthcare leaders

As we work to raise awareness of Kawasaki Disease and keep it high on the radar of clinicians as we go into autumn and winter, Rachael McCormack, Founder of Societi Foundation talks to Professor Damian Roland, Professor Paul Brogan and Professor Simon Kenny to discuss Kawasaki Disease. An interview with doctors, for doctors – but […]

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Kawasaki Disease – A guide for families and carers

Kawasaki Disease – A guide for families and carers

Facing a diagnosis of Kawasaki Disease can be an extremely difficult and upsetting time for families. This guide is intended to help you understand more about Kawasaki Disease, and provide some sources of information and support which are available for you. This guide has been written to provide information for families and carers, who have […]

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Societi Summer Newsletter 2022

Societi Summer Newsletter 2022

We love to be busy and WOW we’ve been very busy! From the RCPCH conference, to Societi research, to creating a new parent booklet – this summer newsletter is just bursting with updates about our work and future plans!

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Societi Christmas newsletter 2021

Societi Christmas newsletter 2021

Read our Christmas 2021 Newsletter! Grab a mince pie and a hot drink while you enjoy reading our Christmas Newsletter full of wonderful stories about #TeamSocieti and the work we’ve all been doing to get Kawasaki Disease known! Merry Christmas & Happy New Year 

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Awareness raising posters and leaflets pack

Awareness raising posters and leaflets pack

Raising awareness of Kawasaki Disease is the best way to ensure affected children are diagnosed and treated early. This WILL reduce the rate of life long heart damage in our children – THANK YOU! We’ve created this poster pack to make it easy for you to download and print Kawasaki Disease information that can be […]

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Fundraising poster pack

Fundraising poster pack

We’ve created this poster pack to make it easy for you to download and print fundraising posters for your event, whatever it is that you decide to do! You may even get some ideas from the posters in this pack!

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World Heart Day 2021 – Impact statement

World Heart Day 2021 – Impact statement

Read our Impact Statement to find out about Societi’s work with our fabulous supporters, brilliant partners and a whole host of exceptional organisations to raise awareness of Kawasaki Disease and heart health on World Heart Day 2021.  

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Kawasaki Disease Podcast – Protecting Tiny Hearts into the Future – An Interview with Dr Tom Johnson

Kawasaki Disease Podcast – Protecting Tiny Hearts into the Future – An Interview with Dr Tom Johnson

To listen to the podcast, click here. Alternatively, you can download our podcast transcript.

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Kawasaki Disease Podcast – The Latest Research – An Interview with Professor Despina Eleftheriou

Kawasaki Disease Podcast – The Latest Research – An Interview with Professor Despina Eleftheriou

To listen to the podcast, click here. Alternatively, you can download our podcast transcript.

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Kawasaki Disease Podcast – Presenting the facts and dispelling myths An interview with Professor Robert Tulloh

Kawasaki Disease Podcast – Presenting the facts and dispelling myths An interview with Professor Robert Tulloh

To listen to the podcast, click here. Alternatively, you can download our podcast transcript.

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Kawasaki Disease Podcast – What everyone needs to know! An interview with Dr Damian Roland

Kawasaki Disease Podcast – What everyone needs to know! An interview with Dr Damian Roland

To listen to the podcast, click here. Alternatively, you can download our podcast transcript.

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Christmas Newsletter 2020

Christmas Newsletter 2020

Our Christmas 2020 Newsletter is here! And what a year it has been…! We hope you enjoy reading our jam-packed Christmas Newsletter full to the rafters of the incredible work of so many phenomenal Societi supporters – there’s never enough space mind you! Grab yourself a hot drink and mince pie, sit back, relax, and […]

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School’s Kawasaki Disease Information Pack – Word format

School’s Kawasaki Disease Information Pack – Word format

If you’d like a school in you local community to raise awareness of Kawasaki Disease, our schools pack is a really handy resource that can help you with that. The pack contains a letter you can customise and lots of posters and leaflets full of useful information to help raise awareness of Kawasaki Disease. It […]

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Summer Newsletter 2020

Summer Newsletter 2020

Here is your Summer 2020 Newsletter! This is one like no other, a simply GARGANTUAN read of INSPIRATION and IMPACT! Sit back, relax and read all about what we (and you!) have been up to in recent months. With so many AMAZING stories from so many Societi Supporters, news about progress, projects and plans for […]

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Societi 10km Training Plans

Societi 10km Training Plans

If you’re thinking about joining #TeamSocieti and Societi Active in completing a Virtual 10k for World Heart Day – THANK YOU!! We know a 10k is no easy feat and we hugely appreciate all the effort you will be putting in to get your 10k done! To help you along the way, our amazing Societi […]

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Societi Christmas Newsletter 2019

Societi Christmas Newsletter 2019

Our festive 2019 newsletter is here – find out about the fabulous work of our Societi Supporters, projects, fundraising and much more!

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Societi Foundation Summer Newsletter 2019

Societi Foundation Summer Newsletter 2019

It’s been a busy few months since our last newsletter – find out about the fabulous work of our Societi Supporters, projects, fundraising and much more!

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Understanding some of the possible longer term issues

Understanding some of the possible longer term issues

A leaflet written for parents and carers of children who have been affected by Kawasaki Disease.

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December Newsletter 2018

December Newsletter 2018

It’s been a busy few months in the run up to December 2018 – find out about the fabulous work of our Societi Supporters, projects, fundraising and much more!

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Marvellous March

Marvellous March

From knitted Easter chicks to paediatric conferences… March has been bursting at the seams! Read our newsletter here.    

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RCPCH Newsletter March 2018

RCPCH Newsletter March 2018

Societi attended the Royal College of Paediatrics and Child Health Conference in Glasgow in March 2018.  Read about our successful and productive few days at the conference.

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Kawasaki Disease Community Newsletter Article

Kawasaki Disease Community Newsletter Article

This newsletter article is really useful if you have a local newspaper/school paper/community newsletter that you would like to run a story on Kawasaki Disease.  Rachael sent this to her local village newsletter and they were more than happy to print the story. The article can be downloaded and emailed directly to your local news […]

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