As always, there’s so much to report on this summer, and never enough room to fit it all in! We’ve been incredibly busy here at Societi HQ – and many of you have been just as busy, with so much fundraising and awareness raising happening. Click here to dive into our summer newsletter and find […]

Merry Christmas & Happy New Year ! Where has 2022 gone? Time has flown since our summer newsletter… and no wonder! We’ve been so busy and together, with your support, we’ve achieved so much! Read all about it in our Christmas 2022 Newsletter! Get your mince pies at the ready, fix yourself a hot drink […]

We protected tiny hearts from Kawasaki Disease!

On World Heart Day, we are calling on everyone to help get Kawasaki Disease known – the #1 cause of acquired heart disease in children in the western world. Children affected by Kawasaki Disease are at risk of being overlooked, with devastating consequences – with hospital systems worldwide under sustained pressure since the pandemic. Awareness […]

We love to be busy and WOW we’ve been very busy! From the RCPCH conference, to Societi research, to creating a new parent booklet – this summer newsletter is just bursting with updates about our work and future plans! Download the Societi Summer newsletter here!

Our KNOW Kawasaki Disease campaign for International Kawasaki Disease Awareness Day 2022 was an overwhelming success. Just some of #TeamSocieti’s extraordinary achievements which led to such an amazing day are highlighted here in our impact statement! Download the Impact Statement here!  

Our Christmas 2021 Newsletter is here! Read all about what #TeamSocieti has been up to this year in our Christmas newsletter – we promise, it won’t disappoint! Click here to download our latest Newsletter – Happy Christmas, Happy New Year & Happy reading!

International Kawasaki Disease Awareness Day 2021 was phenomenal – our most successful campaign yet! #TeamSocieti filled the entire month of January with Kawasaki Disease awareness raising and projects designed to get everyone to KNOW Kawasaki Disease. Our Impact Statement highlights just some of #TeamSocieti’s amazing successes, remarkable achievements and the hard work which led to […]

Our Christmas 2020 Newsletter is here! And what a year it has been…! We hope you enjoy reading our jam-packed Christmas Newsletter full to the rafters of the incredible work of so many phenomenal Societi supporters – there’s never enough space mind you! Grab yourself a hot drink and mince pie, sit back, relax, and […]

HAVE YOUR SOUND ON and WATCH our powerful and hard-hitting campaign video as parents, whose children have been affected by Kawasaki Disease, share their heart felt plea, to ‘Know Kawasaki Disease’ – the leading cause of acquired heart disease in UK children. On average children are misdiagnosed 2-3 times before receiving a correct diagnosis of […]

World Heart Day 2020 – Impact Statement

Here is your Summer 2020 Newsletter! This is one like no other, a simply GARGANTUAN read of INSPIRATION and IMPACT! Sit back, relax and read all about what we (and you!) have been up to in recent months. With so many AMAZING stories from so many Societi Supporters, news about progress, projects and plans for […]

Read Societi Foundation’s Annual Report 2018 – 2019

We’ve been contacted by a huge number of families regarding the severe worry caused by social media and other media coverage on Covid-19 and Kawasaki Disease. A lot of these media articles were confused and contained little factual information. Whilst we acknowledge the important role of the medical community observing these cases and support efforts […]

Read our summary of the impact made by #TeamSocieti this Kawasaki Disease Awareness Day 2020. Thank you to everyone involved in making this year the most successful Awareness Day campaign yet! Download our Impact Statement here.  

To mark Kawasaki Disease Awareness Day, 26 January, our Founder, Rachael, writes on why she raises awareness of Kawasaki Disease. 26 January 2020 Imagine… Imagine seeing the trajectory of your child’s world shift, dramatically, negatively. And as you “watch” you’re powerless. Absolutely powerless to act. Imagine it’s worse than that in fact. Because you KNOW […]

An amazing Gala Ball… WHAT CAN WE SAY?! We were lucky enough to be invited guests at a truly SPECTACULAR VESWAS GALA BALL… Spectacular in EVERY sense – from the gorgeous canapés and drinks reception, to the excitement of the grand entrance to the ball, fuelled by fabulous music, a light show and a carpet […]

We WILL protect tiny hearts! Shaping national guidance…💕 …NICE – which is the National Institute for Health and Care Excellence, have confirmed and now published revised guidance for Fever in under 5’s on their website. This includes new recommendations for Kawasaki Disease!!! See here: https://www.nice.org.uk/guidance/ng143/chapter/Recommendations#kawasaki-disease Creating Change The changes are highly significant and very important indeed […]

On International Kawasaki Disease Awareness Day, Societi Foundation calls for awareness and action to combat this, the leading cause of acquired heart disease in children.

A shocking 39% of infants (babies under one) affected by Kawasaki Disease had serious heart damage – and up to 20% of all children developed coronary artery aneurysms. These children now need specialist care – for life.

Organisations with big hearts join forces for Kawasaki Disease Kawasaki Disease is the leading cause of acquired heart disease in children in the UK. Hundreds of children each year in the UK are affected by Kawasaki Disease and that number is rising dramatically. But as an illness, worryingly, it remains little known. “All Heart” – that’s what it’s ALL […]

TICK TOCK, Tick Tock – We don’t have time! “Slow treatment times for Kawasaki Disease continue to put children’s hearts at risk” – says Societi, the U.K. Foundation for Kawasaki Disease  Today – International Kawasaki Disease Awareness Day – sees the start of a campaign for every doctor and every parent in the UK to know […]