Sarah’s Story
My name is…
Sarah
I am the mother/father of…
Ben
My child is … years old.
6 months old
I want to help protect tiny hearts from the devastating consequences of Kawasaki Disease – the number 1 cause of acquired heart disease in U.K. children because…
Ben started with Kawasaki Disease at 5 months old and we have spent nearly 5 weeks in hospital with him very poorly and he unfortunately now has permanent heart disease now because of it. Totally life changing and heart breaking.
How Kawasaki Disease affected my family …
Our whole families and friends have been affected by it and me and his dad have been traumatised by the experience.
The thing I wish I had known is …
The signs as it took til day 5 for a doctor to come up with Kawasaki even though we’d been in hospital 3 days.
The advice I want to give parents is …
Think Kawasaki if no other cause for fever and rash and trust your instincts.
Is there anything else you’d like to tell us about your experience of Kawasaki Disease?
My boy was so brave when so poorly and remains so brave when he takes his medication and has his injections twice a day 💙
