Heather’s Story

My name is…

Heather

I am the mother/father of…

Jaime

My child is … years old.

Should be 4

I want to help protect tiny hearts from the devastating consequences of Kawasaki Disease – the number 1 cause of acquired heart disease in U.K. children because…

I lost my beautiful boy to this and if only GPs and hospital Drs were more aware he would still be here.

How Kawasaki Disease affected my family …

Words cannot describe how this has destroyed my life.

The thing I wish I had known is …

I asked if it could be Kawasaki as I had been researching symptoms. I wish I had been more forceful.

The advice I want to give parents is …

Advocate for your child. Trust your instincts.

Is there anything else you’d like to tell us about your experience of Kawasaki Disease?

Utterly heartbroken but I cling on by trying to raise awareness.