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Parent Guide

This guide was originally developed by Sue Davidson, one of the founders of the Parent Support Group KSSG, with clinical input from Professor Robert Tulloh and Dr Colin Michie – whilst at Guy’s and St Thomas’ Hospital Trust and  Ealing Hospital respectively.

It has since been fully updated and expanded by Societi Foundation (December 2017) in partnership with KSSG and reviewed for accuracy by Professor Robert Tulloh (Societi Foundation Trustee) for use on our Family Resource Portal.

The original version of this guide was funded by a kind donation from West Malling Golf Club for which KSSG were extremely grateful, also to the family who nominated them for the funds.

Introduction

This guide is intended to help you understand more about Kawasaki Disease.  It cannot answer all your questions but it should help explain some of the common issues raised by parents of children who are diagnosed.  We hope you find the facts useful and are not worried by them.  We discuss lots of aspects of Kawasaki Disease in this section including a number of possible complications.  Just because possible complications are listed, it does not mean that your child will develop all or any of these, it is just meant to explain symptoms or signs should they occur.