We are an influencing and policy shaping organisation. We don’t provide support directly to families – our partner KSSG does that.
Societi has four aims:
Awareness raising, a strong voice
Clinical research - influencing funders/policy
Clinical supervision - shaping new care needs
Supporting the UK Support Group
Societi was established in 2015 to raise awareness of Kawasaki Disease and drive forward change.
We work in partnership with the Kawasaki Support Group UK (KSSG), an entirely voluntarily run organisation which can provide direct support to families experiencing Kawasaki Disease. Contact KSSG via their website: www.kssg.org.uk or click here
Societi has been established to give a voice to Kawasaki Disease - a disease which affects hundreds of children in the UK each year. Societi is an influencing and policy shaping organisation which works through partnerships to drive transformational change in awareness across the UK, about Kawasaki Disease.
Progress in understanding Kawasaki Disease has been severely hampered by poor levels of awareness, a lack of investment and a lack of essential research. Children affected by Kawasaki Disease have excellent chances of a good recovery with timely diagnosis and the correct treatment. Raising awareness of Kawasaki Disease will enable timely diagnosis, correct treatment and appropriate long term care.
About Kawasaki Disease
- In Partnership with KSSG
Key issues - our infographic
- Our Values
RCPCH Impact Statement
Societi is working in close partnership with KSSG - the support group for families affected by Kawasaki Disease. Members of KSSG can check here for updates on our partnership work together.
Identified in 1967 in Japan by Tomisaku Kawasaki, the cause of Kawasaki Disease is still unknown.
The illness - as Kawasaki Disease presents with some symptoms mirroring a range of other childhood diseases - is often misdiagnosed.
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Societi is supporting a Sky UK staff Kawasaki Disease awareness raising event on Monday 26 June. Watch this space for more exciting news!
Societi was created to bring a co-ordinated approach to tackling Kawasaki Disease. We recognise that across the UK we have specific challenges, a particular presentation of the disease which needs a bespoke response, and most of all we need much greater levels of awareness of Kawasaki Disease, starting with the UK medical community.
We have prepared an ambitious strategy which identifies and proposes a response to what we have identified as the priority actions. We aim to permanently and positively change the environment around Kawasaki Disease for our children. We know we need to act together with partners in order to achieve our strategy. Our organisational values shape how we will deliver the needed transformations which we have set out in our UK Strategy (download this on the Resources page).
We will work with others to enable them to recognise Kawasaki Disease as a priority for action and investment
We will act quickly, we will not be hindered and we will act with a momentum that comes from our motivation to succeed
We know we cannot deliver our strategy alone. We will forge strong and lasting, powerful partnerships with organisations and agencies who share our determination to transform the environment around Kawasaki Disease in the UK, and beyond.
Societi - Actively pursuing change
In the UK, children affected by Kawasaki Disease today face the same poor prospects in terms of outcomes as they did 20 years ago. We want to change that.
Check here for updates
Kawasaki Disease is the leading cause of acquired heart disease in children in the UK.
...it's time we changed that.
A Year in Societi!
The UK Kawasaki Disease Foundation