The UK Kawasaki Disease Foundation
Kawasaki Disease Symposium 2016 - A Parent's Summary
Date: March 2017
If you're able to meet the cost of P&P and a contribution towards printing we can send you copies of these if you'd like to distribute them. Justget in touch!
The Mystery of Kawasaki Disease
Date: April 2017
Hard to diagnose with an unknown cause, Kawasaki disease has been puzzling doctors for 150 years. Jeremy Hsu explores what we know, and still don’t know, about this troubling childhood heart condition. His story first appeared on Mosaic and is republished here under a Creative Commons license.
TEMPERS! Awareness Raising Leaflet
Date: June 2017
One of our biggest challenges is making Kawasaki Disease memorable! Our Founder, Rachael, created the TEMPERS mnemonic for us with the aim of doing just that! If you're able to meet the cost of P&P and a contribution towards printing we can send you copies of these if you'd like to distribute them. Just get in touch!
Societi Summer Newsletter
Date: August 2016
For an update on our work over the period December 2015, when we began, to June 2016 - together with plans for the next six months or so, please download a copy of our newsletter here!
NHS Improvement Service – Patient Safety Alert – Stage One Warning
Correspondence to: NHS Improvement Service
Publication date: May 2016
Requires action by all providers of NHS funded care to assess and act on risks re failure to recognise acute coronary syndromes in Kawasaki Disease patients.
The Gordon and Marilyn Macklin Foundation Challenge Grant – An International Research Collaboration
Led by Professor Jane C. Burns M.D. from the Kawasaki Disease Center, the Rady Children’s Hospital in San Diego, United States, this research programme is underway and aims to discover the cause of Kawasaki Disease, develop a diagnostic test and develop new treatments for Kawasaki Disease. It is a partnership project between the US and UK with Prof Mike Levin, Imperial College London leading the UK investigations and programme. A website has been established to raise funds for this international research at:
or more information on the US-led programme, download the information leaflet here.
If you are a family looking for information or support relating to Kawasaki Disease, please visit www.kssg.org.uk - the website of the UK Support Group. The Support Group is run by volunteers who themselves as parents have experienced the challenges of a diagnosis of Kawasaki Disease. They offer listening, understanding and guidance and they also raise vital funds for research and awareness raising. Click here to go to the KSSGUK page.
Included below are documents and links which we hope you find relevant. If there's something missing that you'd like to see, please let us know.
Societi UK National Strategy for Kawasaki Disease
Date: March 2016
We have prepared an ambitious strategy to enable a co-ordinated approach to tackling Kawasaki Disease across the UK. Download our Strategy here.
Make a donation!
We rely on donations to help us carry out our work. Your generosity will make a huge
impact in the fight against Kawasaki Disease. Please help if you can.
Societi Spring/Summer Newsletter
Date: April 2017
For an update on our work over the period July 2016 to April 2017 - find out what we have been up to at Societi and what we are planning next! Download a copy of our newsletter here
KSSG Family Information Leaflet
The UK Kawasaki Support Group has a leaflet with information for families and those affected by Kawasaki Disease which can be found on their website - visit www.kssg.org.uk
Kawasaki Disease is the leading cause of acquired heart disease in children in the UK. It's time we changed that....
...together we will
Awareness Raising Postcard
Date: April 2016
Societi has produced an A5 postcard to raise awareness of Kawasaki Disease. Download the postcard here.
Kawasaki Disease information leaflet aimed at GPs, pharmacists and primary care practitioners
Date: February 2017
Recognising the EARLY DIAGNOSIS is key, we created this flyer for primary care and pharmacy colleagues to raise awareness of Kawasaki Disease.